Support groups for CTE are slowly emerging. If you are aware of one please let us know so we can post here.
Online support groups occur once a month at 8:30pm ET
for those that think they may have CTE and want to talk with others who feel the same,
find date notices and links here: https://www.themindreset.com/events
These closed Facebook groups are for people who can discuss their sports related brain injury confidentially with others that have the same injury…
And this closed Facebook group is for CTE and Concussion Caregivers…
This is a closed group for support, discussion, sharing of information and venting for those with CTE, TBI, PCS, and ABI. This group is also for the loved ones and caregivers that are taking a ride through this journey with the survivors as well.:
This is another closed group that may be helpful
This organization provides guidance and assistance to athletes, both male and female ages 13-24, who have suffered a catastrophic, life altering and/or career ending sports-related injury with mental, physical, and financial support.
Neurodegenerative Disease (PSP/CBD/MSA/LBD/CTE) Support Group
Every 3rd Saturday of the month at 10:30 a.m.
First meeting of 2019-
Saturday, January 19th • 10:30 a.m.
Location: Texas Health Dallas (8200 Walnut Hill Lane) LL Perot Building – Meadows Labs B & C
Topic: We will be splitting this meeting into caregivers and patients; so we can do a perception activity. And then come together to discuss.
RSVP: 214-345-7981 or THDMovementDisorders@TexasHealth.org
Neurodegenerative Caregiver, Past & Present, Support Group
Every 3rd Friday of the month at 11:15 a.m.
Friday, January 18th • 11:15 a.m. (Support Group)
12:15 p.m. – Lunch – provided by Belmont
Location: Belmont Village on Turtle Creek – 3535 N Hall St. Dallas, TX
Details: All care partners of those effected by neurological disease are welcome! This is a safe space to discuss grief, compassion for the self, and share your stories with those that are, or have, traveled the same path. (The Bistro is available for patients while caregivers are in the meeting.)
RSVP: Catrina Nieser 214-345-7981 or THDMovementDisorders@TexasHealth.org
Austin will start their support group January 24th and the facilitator is Judi Nudelman at email@example.com
This following association should provide guidance and support for CTE families:
The Brain Injury Alliance also has help in many states:
New Jersey: http://bianj.org/
New Mexico: https://braininjurynm.org/
Additional Caregiver links:
Other partners in research and caregiving:
BIAA’s Preferred Attorney’s List: