Support Forums and Collaborators

Sadly the medical community does not have many support groups for CTE that we have found. If you are aware of one please let us know so we can post here.

On January 26, 2016, a support forum was started on Facebook by J.J. Walker (a retired football player) called CTE Support Group. Here is the link…

https://www.facebook.com/ctesupport/timeline?ref=page_internal

And there is also this closed Facebook group for people who can discuss their sports related brain injury confidentially with others that have the same injury…

https://www.facebook.com/groups/859738284065373/

And this closed Facebook group is for CTE and Concussion Caregivers…

https://www.facebook.com/groups/925000350927727/

This website offers a newsletter, Facebook page and book directory for brain injury…

http://www.tbihopeandinspiration.com/

This is another closed group that may be helpful

https://www.facebook.com/groups/108398302515255/

This organization provides guidance and assistance to athletes, both male and female ages 13-24, who have suffered a catastrophic, life altering and/or career ending sports-related injury with mental, physical, and financial support.

POSITIVE-STRIDES.ORG

 

 

The Brain Injury Alliance also has help in many states:

Arizona: http://biaaz.org/

Colorado: http://biacolorado.org/

Connecticut: http://www.biact.org/

Idaho: http://www.biaid.org/

Iowahttp://biaia.org/

Minnesota: http://www.braininjurymn.org/

Montana: http://biamt.org/

Nebraska: http://biane.org/

New Jersey: http://bianj.org/

New Mexico: https://braininjurynm.org/

Oklahoma: http://www.braininjuryoklahoma.org/

Texas: http://texasbia.org

Utah: http://biau.org

Washington: http://biawa.org/

Wisconsin: http://biaw.org/

Wyoming: http://www.wybia.org/

 

Additional Caregiver links:

http://www.brainline.org/landing_pages/categories/caregiving.html

http://www.wellspouse.org/

https://www.caregiver.org/

www.Aarp.org/caregiving

http://welcomehome.blogs.hopkinsmedicine.org/2016/02/18/3-ways-to-improve-your-family-caregiver-role-2/?utm_medium=cpcsocial&utm_source=Facebook&utm_campaign=Health&utm_term=3WaysImproveCaregiving&utm_content=WelcomeHomeBlog

 

The following association should provide guidance and support for CTE families:

BIAA Logo

 

 

Other partners in research and caregiving:

DSA Logo with DSA Name JPG

 

 

 

 

CurePSP_logo