CTE Treatment Discussions

We are not doctors and we can never take the place of doctors. The information below is placed here as a resource for discussing different health options with your medical professional. Every brain and injury is different. Good luck on the road to wellness. 

How to Control Inflammation with Your Brain:

Brain researchers are seeing a cyclical link between brain inflammation and CTE. Try to reduce the inflammation and maybe curb CTE:

http://www.integrativepsychiatry.net/brain_inflammation.html

Medical Marijuana May Help Manage Chronic Traumatic Encephalopathy Pain, And Even Slow Disease Progression:

http://www.medicaldaily.com/medical-marijuana-nfl-players-chronic-traumatic-encephalopathy-372648#

The Best Supplements for Your Brain:

http://www.onemedical.com/blog/live-well/supplements-for-your-brain/

Feed Your Head:

http://www.thedoctorwillseeyounow.com/content/nutrition/art3258.html

Testosterone Levels and Brain Health:

http://www.longevity-and-antiaging-secrets.com/testosterone-and-brain-function.html

Blueberries:

Franco Harris, NFL Hall of Fame Steeler, eats two pints of blueberries a day.

http://www.lifeextension.com/magazine/2006/2/report_blueberries/Page-01

Vitamin D

https://www.scientificamerican.com/article/does-d-make-a-difference/

Hyperbarics

http://orlandohyperbarics.blogspot.com/2013/01/chronic-traumatic-encephalopathy-and.html

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81 Awesome Mental Health Resources When You Can’t Afford a Therapist:

http://greatist.com/grow/resources-when-you-can-not-afford-therapy

Exercise + Sleep = Recovery:

Drs. at the National Summit on Sports Concussions suggested 4 days a week of 120+ heart rate exercises for 20 minutes per day and a regimented sleep improved brain health

FDA approves trial of Ecstasy to treat PTSD:

http://www.usatoday.com/story/news/nation-now/2016/12/01/fda-approves-trial-ecstasy-treat-ptsd/94731066/

Therapeutic benefits of a component of coffee in a rat model of Alzheimer’s disease:

http://www.ncbi.nlm.nih.gov/pubmed/25034344

What Makes the Functional Neurological approach different than the standard approach to diagnosing and treating concussion?:

http://askdrchildsdrdurr.com/conditions/concussions

Vestibular Rehabilitation:

http://vestibular.org/understanding-vestibular-disorder/treatment/treatment-detail-page

LI doctors help Jim McMahon get his life back, and they can help others, too:

http://www.newsday.com/sports/football/li-doctors-help-jim-mcmahon-get-his-life-back-and-they-can-help-others-too-1.9493358

Power of Vitamin D :

http://www.lifeextension.com/magazine/2013/10/dr-l-ray-matthews-unleashes-the-power-of-vitamin-d/page-01

Mindfulness :

http://greatergood.berkeley.edu/topic/mindfulness/definition

New Study Identifies Class of Drugs That Removes Abnormal Proteins in Brain and Improves Memory in Mice :

http://www.businesswire.com/news/home/20151221006111/en/Study-Identifies-Class-Drugs-Removes-Abnormal-Proteins

New antibody treats traumatic brain injury and prevents long-term neurodegeneration…

http://medicalxpress.com/news/2015-07-antibody-traumatic-brain-injury-long-term.html

Unique Coalition To Launch Human Stem Cell Trial For Traumatic Brain Injury :

http://www.prnewswire.com/news-releases/unique-coalition-to-launch-human-stem-cell-trial-for-traumatic-brain-injury-300266688.html

 Personalized Repetitive Transcranial Magnetic Stimulation :

Dana Grantee Aims to Offer a More Personalized Treatment for Depression

The following information is from the Bart Foundation:

Craniosachral Therapy (CST)

We are not aware of any comprehensive listing of Craniosachral practitioners in the USA.  What we have been able to find thus far are partial listings, compiled by different organizations, each with an interest in CST.  These are no overarching requirements or certifications for CST practitioners – in many states anyone can claim to be a craniosachral worker, even without suitable training or credentials.  Here are two relatively safe and reliable ways to find a CST practitioner:

  • A physician who practices craniosachral therapy,(usually a Doctor of Osteopathic Medicine, a DO) or
  • Some practitioner with suitable credentials from The Upledger Institute – a Licensed Massage Therapist (LMT), nurse or other health care professional.

Accordingly, here are two lists, one from the Osteopathic Cranial Academy, and the second with candidates who have been credentialed by the Upledger institute, the premier School of CST.

The Osteopathic Cranial Academy: DO’s and Dentists who practice within the cranio field:

To find a physician:  http://cranialacademy.org/find-a-physician/

The American CranioSachral Therapy Association: Endorsed by the Upledger Institute

To find a practitioner:  http://www.iahp.com/pages/search/index.php#result

 

Hyperbaric Oxygen Therapy (HBOT):

We are not aware of any comprehensive listing of HBOT facilities in the USA.  What we have been able to find thus far are partial listings, compiled by several different organizations, each with an interest in hyperbaric medicine.  Note that usually only free-standing independent HBOT clinics are willing to treat brain injuries or other neurological conditions off-label. Hospitals do not generally allow HBOT to be used for such conditions.  Most of the lists are searchable by location, or at least by State.

  • List of HBOT centers compiled by the Program in Integrative Medicine of the University of Colorado College of Medicine:

http://www.healing-arts.org/children/hyperbaricoxygentherapy_hbot.htm#Arizona_HBOT

  • Hyperbaric Link: List of HBOT centers, mostly hospitals, but includes independent free-standing clinics that treat off-label neurological conditions.

http://www.hyperbariclink.com/treatment-centers/treatment-centers.aspx

  • treatnow.org: centers treating wounded warriors, veterans and others:

http://treatnow.org/treatments/treatment-centers/

  • International Hyperbaric Medical Foundation:

http://www.hyperbaricmedicalfoundation.org/hbot-treatment-sites

  • International Hyperbarics Association, Inc.:

http://www.ihausa.org/members/iha-contact.html

  • Undersea and Hyperbaric Medical Society:

https://www.bestpub.com/periodicals-and-subscriptions/find-a-hyperbaric-chamber.html

Neurofeedback

We are not aware of any comprehensive listing of neurofeedback (NF) practitioners in the USA.  What we have been able to find thus far are partial listings, compiled by different organizations, each with an interest in neurofeedback.  There are no overarching requirements or certifications for practitioners – in many states anyone can claim to be a NF worker, whether or not one has suitable training and credentials.  Safest to do one’s own due diligence, including inquiring what experience, if any, the therapist has with brain injuries.

For Traditional neurofedback, there are a couple of good sources:

The EEG Education and Research:

http://www.esiaffiliatesforum.com/providers/us

The Biofeedback Certification Institute of America    http://certify.bcia.org/4dcgi/resctr/search.html

For LENS neurofeedback, the safest source is Ochs labs:

http://www.ochslabs.com/providers.php?country=United+States&search=country

Omega-3 Fish Oils

These are widely available, but not of uniform quality. Dr. Michael Lewis, thought leader in this area of research, recommends only using fish oils that have been double distilled, and preferably reconstituted in their original triglyceride form. Here is a link to his site: http://www.brainhealtheducation.org/omega-3-protocol/

LED Light Therapy – coming soon.

3. Cognitive Rehabilitation:

Cognitive rehabilitation: (These health professionals, generally neuro-psychologists or clinical psychologists, map the injury and devise individualized strategies to remediate/overcome functional deficits):

Center for Neuro Skills – Several locations in CA, and one in Dallas, TX
Kessler Institute – Saddle Brook, NJ
Mount Sinai Hospital Neuropsychology Dept. – NYC
Neuro Psychologic Rehab Services – Albany, NY
Rusk Institute of Rehab Medicine- NYC

4. Physicians and Therapists:


The following physicians and therapists advocate and practice alternative therapies, including HBOT, neurofeedback, neutraceutical supplementation (e.g. omega 3’s) craniosachral therapy, neurofeedback and other approaches.

Dr. Steven Best (Psychiatrist, Chicago, IL)
Dr. Philip DeFina (Neurologist – NJ)
Dr. Paul Harch (Emergency Medicine and Hyperbaric/Diving Medicine – New Orleans)
Dr. Carol Henricks (Neurologist – Tucson, AZ)
Dr. Stephen Larsen (Psychologist neurofeedback – New Paltz, NY)
Dr. Michael Lewis (former US Army Colonel, DC area)
Dr. David Perlmutter (neurologist – Naples, FL)
Dr. Stephen Xenakis, (former US Army general, DC area)

Physician Contact information:

Dr. Steven Best

The Neuroscience Center

Phone: 847-236-9310

http://www.neuroscience.md

Alternatives, including HBOT, Stem Cells, and others

Dr. Philip DeFina
International Brain Research Foundation, Inc.
Flanders, NJ 07836
Email: pdefina@ibrfinc.org
Phone: 732.494.7600
Alternatives, especially HBOT, neurofeedback, neutraceuticals

 

 

Dr. Paul G. Harch or Juliette Lucarini RN
Harch HBOT at Family Physicians’ Center

http://www.hbot.com/

Marrero, LA 70072
(504) 309-4948
Dean of hyperbaric medicine in the USA

Dr. Carol Henricks
Carol L Henricks MD (Neurology) NorthStar Neurology,

Tucson, AZ. 85741

Phone-520-229-1238
http://www.northstarhbot.com/index.php

Protégé of Dr. Paul Harch. Involved with Patriot Clinic movement.

Dr. Stephen Larsen, Ph.D.

Director, Stone Mountain Counseling Center

New Paltz, NY 12561

http://stonemountaincenter.com/site/

(845) 658-8083

stephen@stonemountaincenter.com

Thought leader in neurofeedback

Dr. Michael Lewis
dr.michael.lewis@gmail.com
Brain Health Education & Research Institute
Potomac, MD 20854
http://www.brainhealtheducation.org/about-us/

Alternatives, especially Omega-3 fish oils

Dr. David Perlmutter

hbot@hughescenternaples.com

Hughes Center for Functional Medicine

Naples, Florida

(239) 434-9699

https://hughescenternaples.com/

Alternatives, especially HBOT, nutrition, supplements

Dr. Stephen Xenakis
Bethesda Hyperbaric Oxygen Therapy (BHOT)
(240) 293-2222
http://www.bethesdahbot.com/contact/
HBOT and other alternatives

Additional centers for HBOT and other alternative Therapies:

Dr. David A. Steenblock, D.O.

San Clemente, CA 92673

Phone: 949-367-8870

http://personalized-regenerative-medicine.com/contact/

HBOT and other alternatives

 

Idaho Hyperbarics

Pocatello, Idaho 83201

(208) 237-1151

jeff@idahohyperbarics.com

Dr. Michael Baker, Dr. Charles Garrison, Dr. Michael Gregson

HBOT

 

HOPE Connection
North Reading, MA 01864
Office: (978) 664-8100

info@hope-connection.com

HBOT

 

Hyperbaric Healing Institute

Kansas City, Missouri 64153

(816) 801-7878

info@OxygenUnderPressure.com

HBOT

 

Fayetteville Hyperbarics

Fayetteville, NC 28304

(910) 920-1165

info@fayettevillehbot.com

Dr. Cynthia Wells-McLemore, M.D.

HBOT, functional medicine

 

Sara’s Garden

Wauseon, OH 43567

(419) 335-7272

info@sarasgarden.org

HBOT and other alternatives

 

Island Hyperbaric Center

Pincourt, Quebec, Canada

(866) 677- 7978

info@centrehyperbare.com

Claudine Lanoix

HBOT, Infrared Sauna, Quadriciser