Support Forums and Collaborators

Finding community is key for those recovering from a brain injury or facing suspected CTE. Connecting with others who have shared experiences can provide comfort, hope, and help you cope with the most difficult days. See these available support groups: https://concussionfoundation.org/sites/default/files/2022-12/PeerSupportGroupFlyer_GENERAL.pdf

Closed Facebook groups are for people who can discuss their sports related brain injury confidentially with others that have the same injury. We know many people do not like to use Facebook. You can make your profile private and just for use with these groups. Most are closed groups that you ask to join so your information is protected and you can speak freely. They are very informative and helpful.

This is a closed group for support, discussion, sharing of information and venting for those with CTE, TBI, PCS, and ABI. This group is also for the loved ones and caregivers that are taking a ride through this journey with the survivors as well.:

https://www.facebook.com/groups/164998687455984

Others:

https://www.facebook.com/groups/cteandtbiwarriorcircle

https://www.facebook.com/groups/859738284065373/

https://www.facebook.com/groups/108398302515255/

And this closed Facebook group is for CTE and Concussion Caregivers…

https://www.facebook.com/groups/925000350927727/

This is another closed group that may be helpful

https://www.facebook.com/groups/cteawareness/

Created by FOX Sports’ Jay Glazer and former NFL player and Army Green Beret Nate Boyer, the group brings together veterans and athletes to offer each other support. https://www.vetsandplayers.org/program

This great Facebook page runs a support group once a month on a Tuesday at 7 pm.

https://www.facebook.com/HopeAfterHeadInjury/

 

This organization provides guidance and assistance to athletes, both male and female ages 13-24, who have suffered a catastrophic, life altering and/or career ending sports-related injury with mental, physical, and financial support.

POSITIVE-STRIDES.ORG

This is a great free webinar to remove anxiety and stress created during the Coronavirus crisis but applicable any time:

 

This following association should provide guidance and support for CTE families:

https://www.biausa.org

 

The Brain Injury Alliance also has help in many states:

Arizona: http://biaaz.org/

Colorado: http://biacolorado.org/

Connecticut: http://www.biact.org/

Idaho: http://www.biaid.org/

Iowahttp://biaia.org/

Minnesota: http://www.braininjurymn.org/

Montana: http://biamt.org/

Nebraska: http://biane.org/

New Jersey: http://bianj.org/

New Mexico: https://braininjurynm.org/

Oklahoma: http://www.braininjuryoklahoma.org/

Texas: http://texasbia.org

Utah: http://biau.org

Washington: http://biawa.org/

Wisconsin: http://biaw.org/

Wyoming: http://www.wybia.org/

Additional Caregiver links:

http://www.brainline.org/landing_pages/categories/caregiving.html

http://www.wellspouse.org/

https://www.caregiver.org/

www.Aarp.org/caregiving

http://welcomehome.blogs.hopkinsmedicine.org/2016/02/18/3-ways-to-improve-your-family-caregiver-role-2/?utm_medium=cpcsocial&utm_source=Facebook&utm_campaign=Health&utm_term=3WaysImproveCaregiving&utm_content=WelcomeHomeBlog

 

 

Also when seeking help for Disabilities please see these links:

https://acl.gov/programs/aging-and-disability-networks/state-councils-developmental-disabilities

https://www.nashia.org/StatePrograms.asp

https://www.ilru.org/projects/cil-net/cil-center-and-association-directory

NDRN Member Agencies

Other partners in research and caregiving:

CurePSP_logo

 

 

 

 

Legal Representation

BIAA’s Preferred Attorney’s List:

https://www.biausa.org/professionals/preferred-attorneys