Support Forums and Collaborators

Finding community is key for those recovering from a brain injury or facing suspected CTE. Connecting with others who have shared experiences can provide comfort, hope, and help you cope with the most difficult days. See these available support groups:

Closed Facebook groups are for people who can discuss their sports related brain injury confidentially with others that have the same injury. We know many people do not like to use Facebook. You can make your profile private and just for use with these groups. Most are closed groups that you ask to join so your information is protected and you can speak freely. They are very informative and helpful.

This is a closed group for support, discussion, sharing of information and venting for those with CTE, TBI, PCS, and ABI. This group is also for the loved ones and caregivers that are taking a ride through this journey with the survivors as well.:

https://www.facebook.com/groups/164998687455984

Others:

https://www.facebook.com/groups/cteandtbiwarriorcircle

https://www.facebook.com/groups/859738284065373/

https://www.facebook.com/groups/108398302515255/

And this closed Facebook group is for CTE and Concussion Caregivers…

https://www.facebook.com/groups/925000350927727/

This is another closed group that may be helpful

https://www.facebook.com/groups/cteawareness/

Looking for help getting social security SSI or SSDI or Medicaid?

see : https://mindset.care

or call 857-754-2641

The Headrush Podcast with Paul Frase and Corey Berry is very informative:

And the Broken Brains Podcast with Bruce Parkman is excellent:

 

This following association should provide guidance and support for CTE families:

https://www.biausa.org

Additional Caregiver links:

http://www.brainline.org/landing_pages/categories/caregiving.html

http://www.wellspouse.org/

https://www.caregiver.org/

www.Aarp.org/caregiving

http://welcomehome.blogs.hopkinsmedicine.org/2016/02/18/3-ways-to-improve-your-family-caregiver-role-2/?utm_medium=cpcsocial&utm_source=Facebook&utm_campaign=Health&utm_term=3WaysImproveCaregiving&utm_content=WelcomeHomeBlog

 

Also when seeking help for Disabilities please see these links:

https://acl.gov/programs/aging-and-disability-networks/state-councils-developmental-disabilities

https://www.nashia.org/StatePrograms.asp

https://www.ilru.org/projects/cil-net/cil-center-and-association-directory

NDRN Member Agencies

Other partners in research and caregiving:

Legal Representation

BIAA’s Preferred Attorney’s List:

https://www.biausa.org/professionals/preferred-attorneys