It may be important to just reach out and connect with others dealing with similar issues. This site is for addiction issues but is worthwhile for connecting on any issue. This great resource does online connections 5 X a day every day. https://www.weconnectrecovery.com/free-online-support-meetings
Support groups for CTE are slowly emerging. If you are aware of one please let us know so we can post here.
This great Facebook page runs a support group every Tuesday at 7 pm.
https://www.facebook.com/HopeAfterHeadInjury/
Closed Facebook groups are for people who can discuss their sports related brain injury confidentially with others that have the same injury…
https://www.facebook.com/groups/859738284065373/
https://www.facebook.com/groups/108398302515255/
And this closed Facebook group is for CTE and Concussion Caregivers…
https://www.facebook.com/groups/925000350927727/
This is a closed group for support, discussion, sharing of information and venting for those with CTE, TBI, PCS, and ABI. This group is also for the loved ones and caregivers that are taking a ride through this journey with the survivors as well.:
https://www.facebook.com/groups/164998687455984
This is another closed group that may be helpful
https://www.facebook.com/groups/cteawareness/
This organization provides guidance and assistance to athletes, both male and female ages 13-24, who have suffered a catastrophic, life altering and/or career ending sports-related injury with mental, physical, and financial support.
This is a great free webinar to remove anxiety and stress created during the Coronavirus crisis but applicable any time:
In Texas:
Neurodegenerative Disease (PSP/CBD/MSA/LBD/CTE) Support Group
Every 3rd Saturday of the month at 10:30 a.m.
Location: Texas Health Dallas (8200 Walnut Hill Lane) LL Perot Building – Meadows Labs B & C
Topic: We will be splitting this meeting into caregivers and patients; so we can do a perception activity. And then come together to discuss.
RSVP: 214-345-7981 or THDMovementDisorders@TexasHealth.org
Neurodegenerative Caregiver, Past & Present, Support Group
Every 3rd Friday of the month at 11:15 a.m.
12:15 p.m. – Lunch – provided by Belmont
Location: Belmont Village on Turtle Creek – 3535 N Hall St. Dallas, TX
Details: All care partners of those effected by neurological disease are welcome! This is a safe space to discuss grief, compassion for the self, and share your stories with those that are, or have, traveled the same path. (The Bistro is available for patients while caregivers are in the meeting.)
RSVP: Catrina Nieser 214-345-7981 or THDMovementDisorders@TexasHealth.org
Austin also has a support group and the facilitator is Judi Nudelman at jnudelman51@gmail.com
This following association should provide guidance and support for CTE families:
The Brain Injury Alliance also has help in many states:
Arizona: http://biaaz.org/
Colorado: http://biacolorado.org/
Connecticut: http://www.biact.org/
Idaho: http://www.biaid.org/
Iowa: http://biaia.org/
Minnesota: http://www.braininjurymn.org/
Montana: http://biamt.org/
Nebraska: http://biane.org/
New Jersey: http://bianj.org/
New Mexico: https://braininjurynm.org/
Oklahoma: http://www.braininjuryoklahoma.org/
Texas: http://texasbia.org
Utah: http://biau.org
Washington: http://biawa.org/
Wisconsin: http://biaw.org/
Wyoming: http://www.wybia.org/
Additional Caregiver links:
http://www.brainline.org/landing_pages/categories/caregiving.html
Other partners in research and caregiving:
Legal Representation
BIAA’s Preferred Attorney’s List: